Severe & Multiple Disabilities

 

 

Multiple disabilities

 

* Concomitant impairments

* Cause severe educational problems that cannot be accommodated in a program solely for one impairment

* Example: Severe MR & cerebral palsy

* Physical disabilities can "mask" normal intelligence

 

Severe disabilities

 

* Children with intense physical, mental, or emotional problems

* Need highly specialized education, social, psychological, and medical services

* Experience severe speech/language and/or perceptual/cognitive problems,

* Have abnormal behavior

* May be "medically fragile"

 

Characteristics

* Most (but not all!) have severe MR

* But they can learn!

* There is no such thing as a human "vegetable" !

* Unable to perform self-care independently

* But can participate when assisted

* Do not have typical social interactions

* But can develop friendships

* Difficulty communicating

* Can use "augmentative communication"

* Motor delays/impairments

* Due to abnormal muscle tone (too low, too high)

* Muscle atrophy, contractures

* Sensory impairments

* Vision & hearing problems

* Special health care needs

* Catheterization

* Tube feeding (G-tube or G-button)

* Respiratory ventilation/suctioning

 

Causes

* No identifiable cause 40% of the time

* Most with known cause are due to prenatal biomedical factors

* Genetic metabolic disorders

* dysfunction in production of enzymes leading to a buildup of toxic substances in the brain

* Brain malformations

 

Prevention

* Some cases are preventable through:

* Prenatal testing/

* Prenatal fetal surgery

* Postnatal screening for metabolic disorders

* PKU

* Immunizations

* Protect pregnant women from rubella

* Genetic counseling

 

 

How many students?

* Low incidence

* 1-1.6% of special education students

 

How are they identified?

* Most are identified at birth

* Obvious congenital anomalies

* Low APGAR score

* Measure of heart rate, respiratory effort, muscle tone, gag reflex, & color


How are they tested?

* IQ tests are not valid for this population

* Developmental assessment

* Standardized developmental checklists

* Does not result in useful information for planning IEP

* Ecological assessment

* Assess skills needed to function in various environments

* Results in development of functional IEP goals

 

Curriculum

* MAPs

* Making Action Plans -- a curriculum planning process

* Ecological curriculum

* Similar to "life-skills"

* Focus is on learning functional skills & social relationships


Curriculum modification

* Student participates in shared activity with non-disabled peers

* Multi-level curriculum

* Curriculum overlapping

 

Teaching methods

* Systematic instruction

* Specific procedures with prompts, data collection, positive reinforcement

* Partial participation

* Use of adaptations

 

Inclusion

* Students today are in many settings

* Residential

* Special school

* Special classes within a neighborhood school

* Totally included in regular classes

* Research supports positive effects of inclusion, with placement in age-appropriate & grade-appropriate settings

 

Collaboration

* Professionals

* Teachers, paraprofessionals, medical, OT, PT, SLP

* Families

* Siblings, extended family, parent support groups

* Students/Community

* Non-disabled peers participate in MAPs, Circle of Friends


Through the Lifespan

* Early childhood years

* Early intervention is critical!

* Inclusion promotes positive relationships

* Elementary years

* Schools use collaborative problem-solving, cooperative learning, adaptations

* Middle/secondary years

* School service programs provide support

* Adult years

* Need continued support